My Child has a Learning Disability

78

By cheatlierepeat

Part One

I heard these words today and even though I suspected they might be looming just around the corner, they still had the ability to crush me emotionally. So many questions, so many worries and fears. What does this mean for my boy, for his education, for his quality of life? Normally in a situation like this when presented with something unfamiliar, I would be spending every spare minute googling the subject and finding out everything I could. I didn't do that this time, instead I gave into my fears and uncertainties by curling up into a little ball on the couch. I am strangely thankful at this moment that shock and sadness has kept my "searching" at bay, at least for now. Why? Well because I realized something as I was laying on my couch crying, actually I had a couple of realizations: The first being that I have no idea about what exactly having a learning disability means. Also, that I am probably like most other uneducated people (on the subject) and somewhat ignorant and judgemental about the label. I'm ashamed!

Yes, I am going to learn everything I can about my sons learning disability. I am going to move mountains, heaven and even earth to ensure that he gets everything he needs to succeed in life. I have no idea what I'm facing! I hear the phrase "learning disability" and the word "hopeless" comes to mind. Please don't judge me, I suspect many others don't understand what it means to be learning disabled, it can't just be me. I do know there are different types of learning disabilities, I know there are varying degrees of it. I also know that some of the most brilliant, inventive and creative minds in our world have/had learning disabilities. What I don't know at this point is if my son will be one of the success stories or one of the sad statistics. You know the drill: bad kid, troubled kid, school drop out, life of crime, drug abuser... why did those kids lose their way? What can I do to make him a success story? What will people say about him? Is my baby forever changed by this new label, is he doomed for a life of isolation and pain? Let me tell you a little about him...

He is ten years old and in grade five, I have just been informed that he is reading at a grade one level. How is this possible? We read at home, teachers have only ever said "he's a bit behind, he struggles a bit with reading" This is shocking! How does something like this get overlooked for four years? I feel so sorry for him, sorry for the struggles he will face and I wonder why him? Why this amazing kid, he is seriously the most mannerly, kind, thoughtful child you will ever meet. He has never been disruptive, disrespectful or disliked by any child or adult he has interacted with. I have had every teacher he has ever had pull me aside at some point to tell me what an amazing, kind child he is. He has impressed everyone. As a matter of fact, his grade three teacher called me at work one day in tears, there was something she needed to tell me. All the kids came to school that day with money for the book fair, except one little boy who was from a poor family. All the children went to the library to look at the books, posters and cool little pencils and erasers and to make their purchases. Every child came back to the classroom with something except for my son. His teacher knew he had $20 in his pocket and we both knew how badly he wanted a certain Pokemon poster (it's all he talked about for days) so she was confused at why he had come back to the classroom with nothing. She asked him to join her in the hallway so she could see what was going on. My little guy told her that he used his money on two books, a poster and one eraser for Liam.. The teacher asked him if Liam bullied him into giving him his money (he was known as a bit of a bully). This is how my son responded: " Ms P, Liam comes to school some days with torn clothes and not very much in his lunch box so I think that maybe Liams mom doesn't have very much money, I told Liam he could pick out whatever he wanted and I would buy it for him." I'm telling you, my son is amazing! The teacher called to share this and to ask if I had a problem with the situation and wanted the money returned to my son. I said no of course! I have spent the years up until now teaching my son to show kindness to others and $20 is a very small price to pay to know he understood the lesson. I had never felt so proud!

But back to the purpose of this: I wanted to do a "Part One" to point out how judgemental we can be towards others who are different. I wanted to make myself aware of how uneducated I am about learning disabilities. I also want to document the journey of me learning, sharing and breaking some of the myths surrounding children with disabilities. I want more than anything to refer back to this one day and be able to say "look how far he has come, look how far I've come". At this very moment I know nothing about this issue but I will learn everything I need to learn so I can be a rock for my son. I have an appointment Thursday with the psychologists and school staff at which time I will get all the details of what my son is facing and what tools he will need to succeed.

This was very difficult to write but I refuse to feel shame or embarrassment and I am certainly not willing to believe that he is any less important than a person who learns the" traditional" way. This is the time to throw away all my perceptions about learning disabilities and to make a promise to myself and my child that we will face what ever comes together and that everything is going to be okay. It's going to be okay, right?

Comments

shea duane profile image

shea duane Level 6 Commenter 6 months ago

I am a teacher with many years of training...and I was shocked when I learned about my son's disability. It's hard. As a professional, I would say... you have to determine how your son learns and exactly what he needs to help him... is he having difficulty with decoding or comprehension? Get specifics from the IEP meeting... don't let them speak in general terms ... don't let them say 'oh his IQ yadda yadda... that is all poop. Get specifics about his learning style. And please write another hub... there are so many great teachers on hub pages who can give you suggestions. Good luck.

nemanjaboskov profile image

nemanjaboskov Level 6 Commenter 6 months ago

You have put a lot of emotions in this hub and I'm glad to hear that you are staying positive about all that's going on with you and your son - that's the only attitude to consider :)

A friend of mine from high school has a brother who was learning disabled and I can tell you that it wasn't a big deal in their family. They all pitched in and helped him with his homework, and the kid turned out great!

Don't worry, you'll soon find out how to deal with the situation and what to do to help you son, and after some time you'll be able to look at this hub and smile, rather than feel afraid :)

P.S. Be sure to ask how could it be that this fact was overlooked for such a long time, as this doesn't seem like something that can be easily overlooked...

Best wishes to you and your son!

Nemanja

cheatlierepeat profile image

cheatlierepeat Hub Author 6 months ago

Thank you so much, my heart is so heavy. I know nothing at this time about any of what is coming our way. The only thing I know is that I am strong, that I love my child more than anything in this world and that I will do whatever I need to do to help him on his path. I am concerned about Thursday because the psychologist mentioned a "homeschool discussion" in our telephone conversation. This is all new and very scary to me. I know I need to calm down until I hear more. Thank you for the advice regarding what needs to be discussed. I am trying to make a list of questions/concerns so I wont lose my train of thought when emotions take over.

TToombs08 profile image

TToombs08 Level 4 Commenter 6 months ago

cheatlierepeat: Please do not EVER feel shame or embarrassed, there is absolutely no reason to! My 5 year old is non-communicative Autistic with ADHA and mild mental retardation. Looking at him, you would never know it, until he tries to speak. He makes progress in his own way and I've found the best way to help him is to encourage HIS advancements and NOT compare him to the other kids and how well they are doing. Every child is different and special in their own way. The most important thing is that he knows that you love him, support him and will be there when he needs you. :o) Good luck, he's a lucky kid to have you as his mom. *hugs*

shea duane profile image

shea duane Level 6 Commenter 6 months ago

homeschool discussion sometimes means "we don't want to spend the money to help you."

remember, you are the on the team... if you are not sure, don't sign anything. tell them you have to think about it. if you're not a teacher, you may not have the skill set to help your son grow academically. In my district, when I ask for soemthing, I always get, 'we can always bus your son to another district' which is a threat to get me to break. if they do anything to make you feel that they are not trying to help your son, say...'maybe I should speak to an advocate or a lawyer.'

don't let them bully you. It's about helping you son find success no matter what it costs them. and don't let them put your son's education on you unless to a re confident you can make him feel great about his learning AND catch him up academically... I've been through it all.

cheatlierepeat profile image

cheatlierepeat Hub Author 6 months ago

Thank you! This is very uplifting, I am so confused at this time but I'm sure I will be able to make better decisions once I have the specifics. I am so touched by your sons story. He sounds like an amazing little guy. I guess we just want so much for our children and it makes us sad and afraid to know that they are going to struggle more than others. I also feel guilt because he has had it rough with the divorce and his Dad being an absent father, poor little guy doesn't deserve to have even more on his plate. We are blessed to have an amazing man in our lives who has already insisted he attend the meeting as well so he can have a better understanding on how to help my son.

cheatlierepeat profile image

cheatlierepeat Hub Author 6 months ago

Shea, that was what I heard, that is what scared me. It immediately felt like it was my problem and mine alone. I felt like they were attempting to wash their hands of the situation. I am not at all qualified to help him at this point. We already spend an hour or more on projects that should take 25-30 mins. If I went for this option I would need to hire private tutors (I dont have that degree of financial rsources). I am so thankful for your advice and to know I am going into the meeting with options. I love the advocate/lawyer comment. It makes me feel a little more empowered.... THANK YOU!!!!!

Ann Marie Dwyer profile image

Ann Marie Dwyer Level 3 Commenter 6 months ago

Shea is right. You are the leader of the IEP team, regardless of what the school may say. If you do not like anything (at all), do not sign. The law is on your side.

Five of our children are special needs, with three on the autism spectrum. There are many parents who can help you. I will be one.

I homeschool my youngest two ASD children. When or if it comes to that (mind you, there is much you can do to stop it), I can give you resources for that as well.

Meanwhile, concentrate on the fact you have a brilliant young man with a heart of gold. His reading level does not change who he is or how well you have raised him.

Stay strong,

Red.

cheatlierepeat profile image

cheatlierepeat Hub Author 6 months ago

Thank you Ann Marie (Red) for reaching out. I appreciate your words and offer of support and I am amazed at the level of kindness shown by strangers. It's great to know that you guys are here for me to offer advice and answer questions and I'm sure many wonderful friendships will develop as I walk along this path. You are all angels on earth. Seriously, I am so thankful for this showing of support.

Veianet profile image

Veianet 6 months ago

on the other side of the coin, if my child has a learning disability according to whoever told you, I would personally check on it by reading some books with my child on a day to day basis. You are the most important person in this child's life and you can do better than any of the teachers in the school because he is your son. The love, patience, understanding and guidance you show to your son will be a learning tool to help him become a better reader. Why did it take long for a teacher to tell - grade 5 reading grade one level? (Sorry to say this, but seems to me the teachers were not paying attention to your son). It is your right to ask the school to provide what is needed to help your child. However, it is also best that you spend time with your son homeschooling on the side. You both can benefit on this...keep the faith - no guts no glory. You both can do it together...

cheatlierepeat profile image

cheatlierepeat Hub Author 6 months ago

Thank you Veianet, great advice and I appreciate your words of encouragement.

cheatlierepeat profile image

cheatlierepeat Hub Author 6 months ago

Today is meeting day... with the psychologist who did the assessment and his teacher, any last minute advice? I am so nervous, I have to get it "together" so I can make the best decision for my boy. Once I have let all the info sink in I will write Part Two (The Meeting.) Thanks for all the support thus far :)

Ann Marie Dwyer profile image

Ann Marie Dwyer Level 3 Commenter 6 months ago

If you are uncomfortable AT ALL, do not sign. They will reschedule. Ask a million questions. The best one is: Why? If you do not know what they mean, make them explain it to you. If you do not think a line is good for your son, refuse. They will scramble to change it for you.

You can do this. You are the one who knows your child better than anyone else. You are his greatest advocate. Follow your heart. Do not back down. You are the expert. Red.

shea duane profile image

shea duane Level 6 Commenter 6 months ago

Good luck!

cheatlierepeat profile image

cheatlierepeat Hub Author 6 months ago

Thanks Ladies, I'm feeling calm and ready to do what's necessary for my boy.

GarnetBird profile image

GarnetBird Level 2 Commenter 6 months ago

I know of someone who's son went through RSP programs for an auditory processing disorder..he is now happily graduated from college and making a 6 figure salary running his own franchise..there's hope!! He simply taped all college lectures instead of relying on his own note taking ability..GOOD HUB..

cheatlierepeat profile image

cheatlierepeat Hub Author 6 months ago

Oh GarnetBird, I love hearing the success stories! Thank you for taking the time to share this with me. It warmed my heart.

cheatlierepeat profile image

cheatlierepeat Hub Author 6 months ago

Update: the meeting went great! Everyone was so positive and helpful and completely on board to coming together to help my son. I will fill you in with part two very soon. He has some challenges ahead but I feel hopeful...and blessed.

Look forward to getting your opinions about the outcome. I feel they came through but I might be extremely naive about this.

shea duane profile image

shea duane Level 6 Commenter 6 months ago

I'm so happy for you! As I said, hang tough. I did and my son is doing well now!!!!!!!!

cheatlierepeat profile image

cheatlierepeat Hub Author 5 months ago

Thanks Shea, still much work to do but feel better equipped to deal with this. His learning disability is in reading, he scored average or above in most other areas. He needs immediate intervention and it was recommended that we hire a tutor trained in Ortho Gillingham? for at least three sessions a week. I'm going to write a hub on the meeting, recommendations etc so I can get some expert opinions (from you guys). I feel hopeful which is a start.

shea duane profile image

shea duane Level 6 Commenter 5 months ago

Great! Orton Gillingham was very popular a few years back. I know a lot of students do well with that method. I hope that the district didn't ask you to pay for the tutor. If they did, get a letter from the school case manager, and apply to the county or state dept of ed for funds. the district is supposed to pay for tutoring it recommends (in at least most states).

Happy Thanksgiving!

cheatlierepeat profile image

cheatlierepeat Hub Author 5 months ago

Shea, great information. Yes we were left with the bill on that... $150/week, so I will definitely look into this. I hope you know how much I appreciate your advice and input...you have been a God-send. Thank you!

frugalfamily profile image

frugalfamily Level 4 Commenter 5 months ago

Uggh! I'm so sorry it took so long for them to define that there is a problem. At least they got you to this point. My daughter and I struggled for years just to get her labeled. It wasn't until she was a sophomore in hs that they finally labeled her with dyslexia. Even that is a story in itself. With an IEP he will have more tools to help him succeed. I'm so glad that you wrote this story, because it is so true that the first people blamed are the parents. Even though you read to your child and offered all the opportunities, sometimes there is something different. Even though it is hard, celebrate the fact that you know there is a reason it is hard! By the way he doesn't have a disability, the school system does. He has a learning difference and they need to figure out how to teach to his difference:)

cheatlierepeat profile image

cheatlierepeat Hub Author 5 months ago

Thanks ff, I appreciate your supportive response. It's been a very emotional time but the more I learn the more equipped I feel to help him succeed. So far I am pleased with the schools response and hope it continues. How is your daughter doing now that they know what she has and how they can help. You're right...disabiilty is harsh, I like learning difference much better!

shea duane profile image

shea duane Level 6 Commenter 5 months ago

The school district should be providing services. Your district failed your son to this point... your taxes pay for the district and all the salaries... they should direct some of your tax dollars to help your son. I would be nice, but keep calling the district special services director and say, Can you start this ball rolling by hiring someone to provide the orton Gillingham tutoring until I save enough money to get started. Really, federal law states that the district provide services...

cheatlierepeat profile image

cheatlierepeat Hub Author 5 months ago

I'm definitely following your advice Shea. I'm so glad I have you to ask questions and receive this great advice from. Always appreciated.

cheatlierepeat profile image

cheatlierepeat Hub Author 5 months ago

I'm definitely following your advice Shea. I'm so glad I have you to ask questions and receive this great advice from. Always appreciated.

thumbi7 profile image

thumbi7 Level 6 Commenter 2 months ago

I don't know much about children's learning disability.

But I could make out that you have determination and courage. With that you will be able to face any challenges.

May God bless you and your family

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